THE PLAN IS SIMPLE.
Each week we take one united action to #Fight2FundALS and tag our Members of Congress. The purpose is to educate them on the realities of ALS, and to EVERY WEEK push for increased funding for ALS research.
This is a grassroots social media campaign to end ALS.
We are overwhelmed by how many lives ALS touches. There are dozens of social media accounts dedicated to documenting this devastating disease in their lives and the lives of loved ones. Our Plan will bring together all of the groups on social media who care about ending ALS in a UNITED push for more federal funding. Together we can form a powerful grassroots movement with one voice under #Fight2FundALS. See our past and future actions to learn how ALS is affecting real people every day.
Unite.
Every day, 15 Americans are diagnosed with ALS and told there is no treatment that will extend their life expectancy of 2-4 years, unchanged from 100 years ago.
A movement begins with one post and one voice. One voice becomes many when we all join together. Each week #Fight2FundALS will provide an action (social media post, personal letter) for YOU to personalize. Together we can make all the difference.
Fight.
Tag each post with your representatives, senators and the appropriations committee (don’t worry, we’ll show you how!). Every week we will present the same ask: increase federal funding for ALS research by $300 million dollars in 2025. ALS has been underfunded for DECADES. It is time to catch up.
Remember the Ice Bucket Challenge? Over 17 million people participated raising $115 million in private donations, but only 3 new drugs to treat ALS have been approved in 3 years that raise the life expectancy mere months. More research is needed. More funding. Please join our fight to fund at a government level.
